Kidney Health Report
Excellence in kidney health
The need for a clear national strategy remains as great as ever, with the kidney community continuing to call for more action
In late 2013, a group of kidney professionals and patient bodies, produced the report “Kidney Health: Delivering Excellence”. Whilst acknowledging the progress already made through the hard work of NHS staff, the report highlighted a number of areas such as inequalities in access to high quality care and worrying levels of avoidable harm, where more progress was urgently needed.
The report, which was welcomed in Parliament by the Minister for Public Health, went on to outline 16 clear ambitions for the future of kidney care; ambitions and a future for care that the kidney community must play a central role in ensuring. These ambitions were agreed by NHS England’s Renal Advisory Group, and the authoring bodies continue to meet as the Kidney Health Partnership, holding regular meetings with NHS England, NHS Blood and Transplant and Public Health England.
The need for everyone to get involved
The last two years have seen a number of new challenges to kidney care, however, progress is being made and with your support and involvement we can make an even bigger difference:
- Having called for more attention to quality of life, NHS England have launched the “Transforming Participation in CKD” project looking at coaching and self-management interventions on clinical and patient outcomes https://www.thinkkidneys.nhs.uk/ckd/.
- Our ambition for a greater focus on patient safety and a reduction in Acute Kidney Injury has seen the launch of the national programme and campaign “Think Kidneys” https://www.thinkkidneys.nhs.uk/aki/.
Download the ‘Kidney Health: Delivering Excellence’ report. Or read about the 16 ambitions below.
- Awareness: People – both healthcare professionals and the general public – understand the factors that increase the risk of kidney disease, and action is taken to reduce these risks.
- Identification: All people with kidney disease are correctly identified and monitored.
- Self-management: All people with kidney disease are offered as much information as they would like in order to understand and manage their condition.
- Person-centred care: Care is centred on the person, taking into account individual needs and preferences, quality of life, symptom burden and the presence of co-existing medical conditions.
- Acute Kidney Injury: Avoidable harm related to acute kidney injury is prevented in all care settings.
- Preparation and Choice: All people approaching end-stage renal disease, or moving from one type of treatment for end-stage renal disease to another, understand and are given sufficient time and support to prepare for a treatment that is suitable for them, chosen from the full range of options.
- Equity in Transplantation: Listing for transplantation is based solely on clinical need and suitability, and is not influenced by ethnicity, socio-economic status, or where the potential transplant recipient lives.\
- Increasing Transplantation: The number of transplants, from both living and deceased donors, is increased such that all people likely to benefit from a transplant have the opportunity to receive one.
- Living well with a transplant: A person who receives a transplant is enabled to manage their transplant and is supported to achieve the greatest possible benefit from it.
- Dialysis as a specialised service: Dialysis care (including preparation for dialysis) continues to be commissioned as a specialised service, and is delivered by renal units with the capacity and workforce necessary for all patients to receive high quality dialysis using their chosen method.
- Lifestyle on dialysis: People receive all of the information and education they require to engage fully in the planning and delivery of their dialysis, and are supported to minimise the detrimental impact of treatment on their lifestyle and to self-care if they wish.
- Care for children and young people: All children and young people with chronic kidney disease have unrestricted access to a service specifically designed to meet their needs.
- Allied Services: All people with kidney disease know about, and have access to, a specialist multi-professional team.
- Rare diseases: All people with rare diseases affecting the kidney, and women with chronic kidney disease who are contemplating pregnancy, have unrestricted access to expert advice and care wherever they live and whenever it is needed.
- Research: A research strategy for kidney disease is developed, supported by the funding required to design and conduct high quality studies, and used to further understanding of the mechanisms of disease and improve healthcare quality and outcomes.
- Conservative care: All people who opt for conservative non-dialytic management of their kidney disease or choose to discontinue dialysis treatment are supported by a multi-professional team working closely together to ensure a smooth transition to palliative and end-of-life care.